Links helpful in managing children and young people with urology / continence difficulties.
Please note this is not an exhaustive list and if you wish to add to this data source please contact the webmaster
CathChat This is a new approach to forum design and social networking. The young people themselves are directed to the site via their lead professional in order to facilitate a safe space to discuss challenges issues brought about by managing the complexity of catheterization in young adulthood.
PromoCon provides a national service, working as part of Disabled Living, Manchester to improve the life for all people with bladder or bowel problems by offering product information, advice and practical solutions to both professionals and the general public
ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems.
For many of the children and families who suffer with these issues, ERIC is the only place where they can come to for support, understanding and to access the information they need. We also work hard to improve services for children with continence needs in health and education settings, and to drive up standards of training through our acclaimed seminars for professionals.
The fundamental goal of the ICCS is to improve the quality of life and the life expectancy for all growing individuals with deficient bladder function, expressed as problems of storage and evacuation of urine. ICCS intends to approach this goal by increasing knowledge in all aspects of this problem area.
Mitrofanoff Support was founded in early 2010 by Kyla Rogers and was the first support group for the Mitrofanoff procedure globally. Mitrofanoff Support works with Healthcare Professionals and Hospital Trusts to help improve the education of what it is like to live with a Mitrofanoff from a patients’ perspective. Should you like a representative of Mitrofanoff Support to come and give a presentation, please contact the Charity’s Secretary with full details.
The PCF is an independent national campaign group which was set up in 2003 to improve Government awareness of the needs of children and young people with continence problems and to improve NHS services in this often neglected area of child health. Its membership comprises key paediatricians and specialist nurses in this field, with formal representation from the charity ERIC (Education and Resources for Improving Childhood Continence), PromoCon (Promoting Continence through Product Awareness), the Royal College of Paediatrics and Child Health (RCPCH), the Royal College of Nursing and the Community Practitioners’ and Health Visitors’ Association
A society that meets the needs, values the contribution and celebrates the lives of people living with spina bifida and hydrocephalus.